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Trusted Resources: News & Events
Latest announcements and gatherings
YARR Leadership Academy Application
YARR Leadership Academy is providing a series of on-line courses offered to a select group of young adults in the rare disease community (ages 18-29). Academy students will learn about the roles and opportunities for patient representation in policy making, drug development and the regulatory process and the steps it takes to get there.
Timeline/Dates:
Application open Jan 1st-Feb 15th, 2021.
Deadline to apply on Feb. 15th, 2021 @5pm ET.
All applicants will be notified by March 1st, 2021.
This event has ended.


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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.